These little-known conditions are thought to affect at least one in five children and young people and the resource is aimed at improving early diagnosis.
The free toolkit is funded by the D’Oyly Carte Charitable Trust, the Peter Harrison Foundation and the Ehlers-Danlos Support UK and has been created in collaboration with the Hypermobility Syndromes Association.
Children living with these conditions may have poor attendance due to outpatient appointments or high symptom levels, while some families resort to home education.
These syndromes are often misunderstood and may be more prevalent as they are easily missed or misdiagnosed. It is common for children to remain undiagnosed until later in life.
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