#UnderstandMyEpilepsy: Resources to help schools better support pupils with epilepsy

A lack of in-school support for many children with epilepsy has led to the launch of a new campaign entitled #UnderstandMyEpilepsy.


Headteacher Update reported earlier this year how roughly one-third of children with epilepsy are not getting the support they need to participate fully in school life – with many not even having the Individual Healthcare Plan they are legally entitled to.

The findings came from a 2021/22 survey of families conducted by Young Epilepsy, and it is this same charity that is behind the new campaign.

Young Epilepsy already offers a guide for schools focused on supporting children with the condition and the campaign is now offering more resources aimed at busting myths and increasing understanding of the condition.

The charity says that without the proper support and understanding of their individual needs, children with epilepsy are often simply left out. Its research found that 21% of pupils reported being excluded from activities and opportunities at school, with some being prevented from taking part in sports and milestones such as residential trips and school photos.

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